CN46 - Experiences and sexuality of participants with a permanent colostomy after cancer treatment: A qualitative study

Background

Each year, approximately 1.4 million people worldwide are diagnosed with cancer, of which 10% are diagnosed with colorectal cancer. A colostomy can negatively affect quality of life in various ways. The aim of this study was to explore the experience and perception of participants with a permanent colostomy after rectal cancer treatment with a focus on the sexual experience.

Methods

An explorative qualitative study was conducted. Semi-structured interviews were conducted in two hospitals. Fifteen participants with a permanent colostomy after treatment for rectal cancer participated. A thematic analysis was performed and investigators’ triangulation was used during data-analysis. Data-saturation was obtained in most of the themes.

Results

Five main themes were retained: (1) living with a definitive colostomy, (2) seeking control through trial-and-error, (3) in relation to the other, (4) the sexual experience, (5) the provision of care. How participants experience life with a permanent colostomy was central to the themes. Participants are often not aware of the possible consequences of a colostomy on their general and sexual experience. In addition to commonly reported sexual functional problems, such as erectile dysfunction and vaginal dryness, the psychosocial aspect plays a major role. Mainly altered self-image and feelings, such as shame and anxiety, were most frequently expressed. Healthcare providers play an essential role in the information, education and training of the ostomy carrier.

Conclusions

Within the current care provision, sexuality is still insufficiently included in the care and treatment plan. This ensures participants feel only to a limited extent informed about the effects of the treatment on their sexual experience. There is need for a proactive approach to discuss sexuality.

Clinical trial identification

B6702020000316.

Editorial acknowledgement

Legal entity responsible for the study

The authors.

Funding

Has not received any funding.

Disclosure

All authors have declared no conflicts of interest.