Abstract 1434P
Background
The incidence of early-onset colorectal cancer (defined as adults aged under 50) is increasing. A diagnosis of early-onset colorectal cancer and its treatment presents unique challenges for these patients and there is a need for better understanding of their supportive care needs. The aim of this study was to explore the lived experiences of individuals receiving treatment for early-onset colorectal cancer, the resulting impact on their lives, and their needs for support.
Methods
Individuals diagnosed and treated for early-onset colorectal cancer in the UK in the last 5 years were recruited from social media. Virtual semi-structured interviews were held with participants from August 2021 to March 2022, which were recorded and transcribed verbatim. Data were analysed using thematic analysis.
Results
Twenty-one individuals participated in interviews (n=16 females and n=5 males), with stage I-IV disease. Participants reported a negative psychological impact including anxiety, body image and fertility concerns. Participants expressed an appreciation for the NHS and healthcare professionals, along with frustrations regarding aspects of their care. Online forums and social media were helpful sources of information and support. Participants also spoke about the impact of cancer treatment on their families and friends.
Conclusions
Our study highlights the unique issues experienced by this patient group during treatment, including the lack of specific care and recognition of younger adults with colorectal cancer. There is a need for more holistic care of these individuals, with service improvement particularly required in the areas of mental health support and fertility counselling.
Clinical trial identification
Editorial acknowledgement
Legal entity responsible for the study
The authors.
Funding
HSC R&D Division, Public Health Agency, Northern Ireland.
Disclosure
All authors have declared no conflicts of interest.