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Poster session 19

CN55 - The testing times project: Collaboration in action

Date

10 Sep 2022

Session

Poster session 19

Topics

Patient Education and Advocacy;  Staging and Imaging

Tumour Site

Presenters

Mark Foulkes

Citation

Annals of Oncology (2022) 33 (suppl_7): S820-S826. 10.1016/annonc/annonc1045

Authors

M.R. Foulkes1, P. Hunt2, S. Orton3, N. Sharma4, L. Cox5

Author affiliations

  • 1 Berkshire Cancer Centre, Royal Berkshire Hospital - NHS Foundation Trust, RG314EH - Reading/GB
  • 2 Project Manager, West Berkshire CCG, RG302BJ - Reading/GB
  • 3 Project Manager, Macmillan Cancer Support, G1 2PP - Glasgow/GB
  • 4 Project Manager, Macmillan Cancer Support, EH3 8EG - Edinburgh/GB
  • 5 Project Manager, Thames Valley Cancer Alliance, OX4 2LH - Oxford/GB

Resources

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Abstract CN55

Background

In the UK it is people from non-white and non-English speaking communities have a poorer experience of cancer care than those of a white, UK ethnicity. The National Cancer Patient Experience Survey has shown this over the last three years. Poorly performing questions for these communities ask respondents whether they received all information needed on cancer tests and whether results were explained in an understandable way In West Berkshire a project group was formed to address this with representatives from an Acute Hospital, a Community Comissioning Group, a cancer charity, a regional Cancer Alliance and the facilitator of a community group (the ‘Cancer Champions'). The project took a well evaluated leaflet on tests in English and translated it into three languages, Nepalese, Urdu and Polish. These represent the largest non-English speaking communities in West Berkshire.

Methods

The leaflet was taken to focus groups from three communities (Neplaese, Urdu-speaking and Polish-speaking) and was firstly presented in English and views captured via a questionairre, then the same in the translated language. Structure, visual presentation, use of pictures and translation quality was appraised. The groups considered what other support might be necessary alongside the leaflet, (eg who might group members contact if they were concerned about tests for cancer) and whether the information would be more impactful in a different format. These improvements will be made, including provision in other formats and presented back to these focus groups.

Results

All communities believed the leaflet in their own language was more useful than English and some believed that a format with more pictures and simplified text would be better. All believed that a short film on ‘cancer tests' would be useful. Groups will continue to appraise this information but could also be used to consider the views of non-English speaking populations for a range of issues in cancer care. The results will be presented graphically and more results will be available on presentation.

Conclusions

The focus group methodology and the use of PDSA cycles is an effective way of improving information given to non-English speaking community groups and a range of additional benefits to populations and to cancer care in West Berkshire will be presented.

Clinical trial identification

Editorial acknowledgement

Legal entity responsible for the study

The authors.

Funding

Has not received any funding.

Disclosure

All authors have declared no conflicts of interest.

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