Oops, you're using an old version of your browser so some of the features on this page may not be displaying properly.

MINIMAL Requirements: Google Chrome 24+Mozilla Firefox 20+Internet Explorer 11Opera 15–18Apple Safari 7SeaMonkey 2.15-2.23

Palliative and end of life care

CN25 - The haemato-oncology patient experience of the process of palliative care: A constructivist grounded theory study

Date

22 Sep 2021

Session

Palliative and end of life care

Presenters

Karen Campbell

Citation

Annals of Oncology (2021) 32 (suppl_5): S1266-S1266. 10.1016/annonc/annonc693

Authors

K. Campbell

Author affiliations

  • School Of Health And Social Care, Edinburgh Napier University, EH11 4BN - Edinburgh/GB
More

Resources

Login to access the resources on OncologyPRO.

Abstract CN25

Background

Haemato-oncology (HO) patients comprise 8.5% of the overall adult cancers within the UK. Despite advances in treatment, eventually the majority will enter into a palliative care phase. Evidence suggests palliative care is late or non-existent for HO patients, resulting in suboptimal care with many dying in hospital. Various reasons have been cited as affecting integration of palliative care services. However, to-date there has been no studies from the patient’s perspective of the process of palliative care in last year of life.

Methods

Using the design of Constructivist grounded theory, 21 semi-structured patient interviews were conducted from two different NHS trusts between 2016-2017. Constant comparison technique was used to collect and analyse data.

Results

The substantive theory of ‘Suspended and silent status passage: The incurable haemato-oncology illness trajectory’ emerged from the two core categories ‘facing death’ and ‘talking about death’. It describes the length of time, which is suspended, that HO patients face death; where overtime discussions around dying and future care needs are silenced. This is a new conceptualisation that has emerged from haemato-oncology participants experience in the last year of life.

Conclusions

This study reconceptualises the incurable pathway as a ‘Suspended and silent status passage’ with the inevitable outcome of death rather than a possibility of cure. The two core categories ‘facing death’ and ‘talking about death’ describes the length of time, which is suspended, that the patients face death; where overtime discussions around dying and future care needs are silenced. The findings also illustrate that palliative care service provision should be based upon episodic critical episodes of care allowing responsive process of care.

Clinical trial identification

Editorial acknowledgement

Legal entity responsible for the study

University of Stirling.

Funding

Has not received any funding.

Disclosure

The author has declared no conflicts of interest.

This site uses cookies. Some of these cookies are essential, while others help us improve your experience by providing insights into how the site is being used.

For more detailed information on the cookies we use, please check our Privacy Policy.

Customise settings