Abstract CN19
Background
Women with BRCA+ gene mutation require relevant information to help them to make informed decisions about managing their cancer risk. However, there is a lack of targeted informational support for women living with BRCA+ in Ireland. The objective of this study is to identify the information needs of women with BRCA+ gene mutation regarding cancer risk management and decision-making.
Methods
This is a descriptive qualitative study. Semi structured focus groups and interviews were conducted with female BRCA mutation carriers (n=16) and health and advocacy professionals (n=10). Data were analysed thematically.
Results
Several themes were identified, one of which ‘Cancer Risk Management Decision-Making’ is described herein. Women’s decisions about risk-reducing surgery were affected by their family history, age, level of risk, and plans of having children. Many women found it difficult to decide between mastectomy and screening and choose the timing of oophorectomy. They hoped to receive more information about options for cancer risk management, including surgery, screening, and lifestyle changes.
Conclusions
This study suggests women with a BRCA+ gene mutation need more accessible information about the decision-making process and risk management options. The results will be used to identify relevant content for developing an informational decision aid.
Clinical trial identification
Editorial acknowledgement
Legal entity responsible for the study
The authors.
Funding
The Irish Cancer Society.
Disclosure
All authors have declared no conflicts of interest.