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Poster display session: Basic science, Endocrine tumours, Gastrointestinal tumours - colorectal & non-colorectal, Head and neck cancer (excluding thyroid), Melanoma and other skin tumours, Neuroendocrine tumours, Thyroid cancer, Tumour biology & pathology

1408 - Patient reports of mouth symptoms after radiotherapy treatment for head and neck cancer: an international survey.

Date

21 Oct 2018

Session

Poster display session: Basic science, Endocrine tumours, Gastrointestinal tumours - colorectal & non-colorectal, Head and neck cancer (excluding thyroid), Melanoma and other skin tumours, Neuroendocrine tumours, Thyroid cancer, Tumour biology & pathology

Topics

Tumour Site

Head and Neck Cancers

Presenters

Christopher Curtis

Citation

Annals of Oncology (2018) 29 (suppl_8): viii372-viii399. 10.1093/annonc/mdy287

Authors

C. Curtis1, A. Nicotera2, C. Griseri2, H. Roddam3

Author affiliations

  • 1 -, The Swallows Head and Neck Cancer Support Group, FY4 1AB - Blackpool/GB
  • 2 Allied Health Research Unit, University of Central Lancashire, PR1 2HE - Preston/GB
  • 3 Health Sciences, University of Central Lancashire, PR1 2HE - Preston/GB
More

Resources

Abstract 1408

Background

People with head and neck cancer frequently have symptoms that are caused by their disease or by their treatments, which may significantly impact on their quality of life living with and beyond cancer. This international research survey captured a self-rating report by people who have had radiotherapy (RT) treatment for head and neck cancer about their experience of oral symptoms, including Dry Mouth (Xerostomia).

Methods

This survey was designed by patients, and then submitted for ethical approvals in collaboration with a healthcare researcher. The international survey was open to anyone over 18 who has had treatment for head and neck cancer, whether or not they currently have symptoms of Dry Mouth. The electronic survey was only in English and the ethical permissions granted that patients who wished to take part could request assistance if needed; due to illness, fatigue, confidence in accessing the internet, or English literacy. Participant recruitment was supported through a wide range of networks including healthcare practitioners, charities and patient support groups. The average time to complete the 18-item survey was under 10 minutes; including both multiple choice and open questions. The statistical analysis reflected correlations between the participant demographics and self-report of symptoms. An interpretive analysis of free text responses highlighted patient values and priorities.

Results

Over 100 individuals responded, from across UK, US, Canada, Australia, India and mainland Europe. The analysis demonstrates patterns between the patient demographics, types of radiotherapy treatments, time since treatment, and current symptoms. This is the first time that this original dataset will be presented. The findings also generated insights into the self-reported impact of these symptoms on patients’ quality of life.

Conclusions

This study comprises important evidence of patients’ experiences and symptoms following RT treatment. The cross-sectional dataset also indicates the global view of recent and current RT treatment approaches. Future collaborative research by healthcare researchers, patient groups and relevant pharma is imperative. This research will be presented by a Patient Advocate.

Clinical trial identification

Legal entity responsible for the study

University of Central Lancashire.

Funding

Has not received any funding.

Editorial Acknowledgement

Disclosure

All authors have declared no conflicts of interest.

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