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Poster display session: Breast cancer - early stage, locally advanced & metastatic, CNS tumours, Developmental therapeutics, Genitourinary tumours - prostate & non-prostate, Palliative care, Psycho-oncology, Public health policy, Sarcoma, Supportive care

3140 - Congruence between actual place of death and preferences of Egyptian patients with advanced cancer and their family caregivers

Date

22 Oct 2018

Session

Poster display session: Breast cancer - early stage, locally advanced & metastatic, CNS tumours, Developmental therapeutics, Genitourinary tumours - prostate & non-prostate, Palliative care, Psycho-oncology, Public health policy, Sarcoma, Supportive care

Topics

End-of-life Care

Tumour Site

Presenters

Samy Alsirafy

Citation

Annals of Oncology (2018) 29 (suppl_8): viii548-viii556. 10.1093/annonc/mdy295

Authors

S. Alsirafy1, O. Zaki2, N.Y. Ibrahim2, W. Elsherief2, A. Hammad1

Author affiliations

  • 1 Palliative Medicine Unit, Kasr Al-Ainy School of Medicine, Cairo University, 11562 - Cairo/EG
  • 2 Clinical Oncology Department, Kasr Al-Ainy School of Medicine, Cairo University, Cairo/EG
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Resources

Abstract 3140

Background

Identifying the preferred place of death (PPoD) of incurable cancer patients and their family caregivers is important for the delivery of end-of-life care that meets their needs. The PPoD was not studied before in our region where talking with patients about death is largely perceived as unacceptable. Our aim was to study the PPoD of Egyptian patients with incurable cancer and their family caregivers and the actual place of death (APoD) of these patients.

Methods

A prospective observational cohort study that included 92 patient/family caregiver dyads. Patients and family caregivers were asked about their PPoD (home, hospital or other) in the event of patient’s death. Patients were followed up until death to know the APoD.

Results

Seventy-nine (86%) dyads answered the question about their PPoD. Home was the PPoD in 74 (93.7%) patients as well as their family caregivers. The congruence in the PPoD between patients and family caregivers was 94.9% (Kappa = 0.573). The APoD was home in 65 (82.3%) patients and hospital in 14 (17.7%). Overall, 78.5% of patients died in their PPoD; however, the kappa value was low (=0.013). Similarly, the congruence between caregivers’ PPoD and APoD was poor (Kappa = 0.013). Patients who preferred death at home were more likely to die in their PPoD (p = 0.001).

Conclusions

The results suggest that, in the absence of the stand-alone hospice model, home is the PPoD for the vast majority of Egyptian patients with incurable cancer and their caregivers. Although the majority of patients die at home, other patients die in hospital contrary to their home death preference.

Clinical trial identification

Legal entity responsible for the study

Kasr Al-Ainy School of Medicine, Cairo University.

Funding

Has not received any funding.

Editorial Acknowledgement

Disclosure

All authors have declared no conflicts of interest.

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