ESMO Workshop Cancer Patient Advocate Networks Driving Research

Oncology Meeting Resources

05 Feb - 07 Feb, Brussels, Belgium

ESMO Workshop Cancer Patient Advocate Networks Driving Research square

Main learning objectives for the ESMO Workshop Cancer Patient Advocate Networks Driving Research include understanding the concept of social networks, their potential and how to leverage it in the research context; analising different research tools to turn anecdotes into evidence and how to use that evidence for advocacy; finding answers to the question "how can patient networks drive clinical research in Europe?"

Slides from the Workshop are now available here. The use of these slides is for personal educational purposes only. ESMO thanks the authors for their generosity.

Useful Links

Presenter Presentation title Session title
B. Ryll, SE Introduction To The Workshop: Patient Networks And Research Welcome And Introduction
F. Van Hunsel, NL Patient Reporting - Why It Matters Turning Anecdotes Into Evidence: Direct Patient Reporting In Pharmacovigilance
R. Chandler, SE Has Someone Seen This Before? Vigiaccess- An Open-Access Side Effect Resource Including Direct Patient Reports Turning Anecdotes Into Evidence: Direct Patient Reporting In Pharmacovigilance
A. Plate, SP Mapping Access To Treatments - The MPE Example Mapping For Access. Why Map, How To Do It And How To Use The Data For Action.
R. Stahel, CH Patient Access To Cancer Medications In Europe: Esmo Assessment Mapping For Access. Why Map, How To Do It And How To Use The Data For Action.
A.M. Forsea, RO Turning Mapping Into Advocacy Action Mapping For Access. Why Map, How To Do It And How To Use The Data For Action.
G. Moro, IT What Can And Should Patient Knowledge Contribute To Our Societies? Civic Knowledge
F. Pignatti, UK Which Type Of Evidence Is Useful For Regulators? Generating Evidence For Regulatory And Hta Bodies
A. Plate, SP Generating Evidence for The Regulator – Example of The Benefit-Risk Project Generating Evidence For Regulatory And Hta Bodies
B. Ryll, SE Collaborating With The EMA - Example Of The R/B Project Generating Evidence For Regulatory And Hta Bodies
J. Bouvy, UK Decision - Making In HTA Processes Generating Evidence For Regulatory And Hta Bodies
C. Roffiaen, IT Experience Of The Lymphoma Coalition Patient Survey Generating Evidence For Regulatory And Hta Bodies
J. Geissler, DE CML Adherence Study - Lessons Learned Panel Discussion
S. Wagers, BE Data - What Patient Advocates Should Know Research Priority Setting And Infrastructure
U. Ohlms, DE Building Your Own Biobank Research Priority Setting And Infrastructure