483P - Assessment of Information Needs And Decision Making Preferences In Patients With Metastatic Cancer (483P)

Date 18 November 2017
Event ESMO Asia 2017 Congress
Session Poster lunch
Topics Psychosocial Aspects of Cancer
Palliative and Supportive Care
Patient Education
Presenter Deepa Joseph
Citation Annals of Oncology (2017) 28 (suppl_10): x144-x148. 10.1093/annonc/mdx673
Authors D. Joseph, B.C. Narasimhulu, M. Malik, S.F. Ahmed, D. Valiyaveettil
  • Radiation Oncology, Nizam's Institute of Medical Sciences, 500082 - Hyderabad/IN

Abstract

Background

The diagnosis of cancer is a stressful experience. The disease requires patients to learn about the illness, make decisions regarding treatment, and cope with the illness and therapy. It has been postulated that having relevant information helps patients understand the disease and facilitates patients’ decision making.

Methods

This is a prospective study done from 2016-2017 in 45 patients with metastatic solid malignancies who received palliative radiotherapy at our Institute. We assessed Information needs of patients using Cassileth’s Information Needs questionnaire. Decision making, control preferences, decisional perception and conflict has been assessed using control preference scale, patient perception scale and SURE testquestionnaire.

Results

45 patients were included in the analysis. Median age was 52 years (range 25-73 years). 53% of patients were illiterate. 86.6% of the patients belonged to low socio economic class. Most common primary site was lung (33%). Bones were the most common metastatic site (75.5%). Majority of the patients absolutely wanted to know about their disease (88.8%), treatment related information, their prognosis and possible side effects of the treatment offered. The education status of patients did not influence their need for acquiring disease and treatment related information. All patients felt sure about the best choice for them. 40% did not understand the benefits and risks of each option and majority (80%) were not clear about which benefits and risks mattered to them most. 80% of patients experienced decisional conflict (SURE test score

Conclusions

Majority of the advanced cancer patients who received palliative radiotherapy absolutely wanted to know about their disease and treatment related information. A majority of the patients had decisional conflict and did not understand the risk benefit ratio. Most of the patients preferred a passive role in final treatment decision and left the decision entirely to the treating physician.

Clinical trial identification

Legal entity responsible for the study

IEC

Funding

None

Disclosure

All authors have declared no conflicts of interest.